Nicky (cont.)

He can count to 100, knows the entire alphabet, and can spell so many words that his mother reports she has lost count of them. Nicky is a beautiful kid with blond hair and blue eyes. He has the Hallopeau Siemens, Recessive Dystrophic type of Epidermolysis Bullosa which causes him to blister and scratch very easily. Nicky's worse spots for blisters are his hands, feet, ankles and knees; he is almost always in pain. Internally, his mouth and esophagus are also in bad shape. He throws up often and bleeds daily. Nicky is a special little guy and we hope that he touches you in the same way he has touched us here at EBTrek.